Dr. McCormack went over the importance of clinical trials and the specifics of the MILES Trial-much of this information can be found on the Foundation website (http://www.thelamfoundation.org/).
One important change is to how a definitive diagnosis for LAM can be made that would not require a biopsy. In addition to a CT scan consistent with LAM, a VEGF-D level greater than or equal to 800pg/ml may be acceptable. So if not wanting to go through a biopsy to become eligible for the trial has been a barrier, contact your study coordinator to see if this is a possibility.
In response to a question, Dr. McCormack also made a clarification about the $22 million dollar grant received by the University of Cincinnati. The grant was to the University for translational research not to LAM. However, LAM could benefit because treatment studies for LAM could be conducted there.
Time to go. More tomorrow.
Mary Harbaugh
One important change is to how a definitive diagnosis for LAM can be made that would not require a biopsy. In addition to a CT scan consistent with LAM, a VEGF-D level greater than or equal to 800pg/ml may be acceptable. So if not wanting to go through a biopsy to become eligible for the trial has been a barrier, contact your study coordinator to see if this is a possibility.
In response to a question, Dr. McCormack also made a clarification about the $22 million dollar grant received by the University of Cincinnati. The grant was to the University for translational research not to LAM. However, LAM could benefit because treatment studies for LAM could be conducted there.
Time to go. More tomorrow.
Mary Harbaugh
Thanks Mary for writing this!!! There is hope!!
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