Blogging is a brand new experience for me so bear with me. I have been asked to try and give the scientific side to the presentations.
We are just getting started with sessions and so far it has been getting to know each other, meet old friends, and make new friends. We just finished with the Roundtables on special topics-I was at the Asymptomatic/Slow Progression table. It was an opportunity to share our experiences and to know we are not alone. We could ask and answer many of the questions that if we hesitate to ask our doctors-they might look at us more than a little strangely.
After a break Dr. McCormack will be talking about the MILES Trial and clinical trials in general so later today I will share his comments.
Tomorrow, Dr. Taveira-DaSilva will be talking about the effect of exercise (our favorite!) on LAM and then I hope to attend some of the scientific sessions.
It is humbling to know that so many great minds are so devoted to finding answers and effective treatments for LAM. We inspire them and they inspire us!
More later.
Mary Harbaugh
LAM Patient
Northern Region LAM Liaison
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Hi, Mary and all: Sorry we were not able to make it this year. Tell Dr. DaSilva and Moss and Pauline that I said hi and am still doing great 5.5 years post tx!
ReplyDeleteMiss you guys. Make sure somebody gets a good photo of the quilt. Gina